Clinical Trials

Hi everyone,

I wanted to let you know that Washington University has 3 clinical trials that I qualify for.  Two of them are phase 1 which means they have never used the chemicals on people before.  The other is a phase 2 trial and requires another biopsy.

The oncologist thinks trials are good and that a patient can always get the regular treatment, but a patient may not always qualify for a trial.  Sometimes too many previous treatments can disqualify you.

I hope Boston will have more to offer me.  Thank you for your prayers.  I will keep you informed.

In His hand,

Sue

Praise Report!

Dear family and friends,

I have good news!  Praise the Lord with me for answered prayer!  My MRI Spectroscopy showed no new tumor growth. I truly believe God worked a miracle in my life.  This week in Chicago, the radiation oncologist made a mask for steriotactic radio surgery and said he would be ready to treat me next Wed. if I had new tumor growth.  I believe he was confident it was cancer. 

 I have texted with Dr. Fidias, my first oncologist, and he said he would start the process to get me to Boston to go to Massachusetts General Hospital.  Dr Fidias has a colleague there who works specifically with the gene mutation that I have.  

Please pray for God to give wisdom to  these doctors and to me.  I am asking the Lord to open the correct doors and close those He does not want me to walk through.  

I can not express my gratitude to the Lord and to all of you who have prayed so diligently for me.  Thank you so much for your prayers.  The Lord is gracious and merciful to me. Please join me in praising the Lord and thanking Jesus for answered prayer. 

In His hand and with love,

Sue

Urgent Prayer Request

Dear family and friends,

I would like to ask you to pray a specific prayer for me.  On Tues, Sept 13th I am going to have an MRI spectroscopy to determine if 2 of the tumors in my brain are increased in size because of tumor growth or radiation swelling.  I will not have results for at least 4 days.  I just found out the if the growth is due to cancer, I will be excluded from any clinical trials and probably from genetic therapy.  Please ask the Lord for mercy in this situation and pray that the increased growth is only swelling.

I am also needing direction for my next treatment.  I am communicating with my previous oncologist, Dr. Fidias, from Az.  He is now in New Hampshire and looking for a new treatment option for me.  Please pray for wisdom for Dr. Fidias and for the Lord to lead and guide me in all my decisions.  Ps 119:105  Your word is a lamp unto my feet and a light unto my path.  Right now I feel like a have the light of a lamp at my feet.  Not much light, but enough for the next step.  

Thank you for your support and prayers on this timely matter.  I will update you as soon as I know something.  Praise the Lord for His goodness to me.

In His hand and with love and gratefulness,

Sue

Bad Results

Dear family and friends,

I did not receive good news this week.  My cancer has spread to T6 in my spine.  I also have new tumors in my lungs and the old tumors have grown.  The immune therapy did not work at all over this 6 month period of time.

I have 2 possibilities at CTCA.  I must wait about 3 weeks to see if I qualify for a gemomic treatment.  The other option at CTCA is a highly toxic chemo therapy.  My oncologist is recommending I go to MD Anderson in Texas to see if I might qualify for a clinic trial.

Please pray that the Lord will lead and guide me in my decision for my next treatment and where to go to get it.  I am planning on pursuing MD Anderson in the next few weeks.  Please also pray that I will not be discouraged and I will keep my eyes on the Lord.  Thank you for your prayers, love, and support.

In His hand and with love,

Sue